95-603 / Patients training other patients

Spain
GOP Information  
 
Organisation sharing the GOP
Related practices from PaSQ database
The Andalusian School of Public Health

Topic

Patient empowerment
There is no specified text here
Category
Patient education
Patient safety culture / Patient safety climate
GOP Description
 
Implementation level
Regional
Clinical settings
Patients with different chronic diseases (diabetes, asthma, breast cancer, COPD, fibromyalgia, heart failure, colon cancer, caregivers, palliative care). These trained patients have trained other patients, reaching more than 15,000 patients, besides all patients reached through social networks.
Objectives
•To improve patients and users’ knowledge and skills about their chronic disease, quality of life, services use, adherence, and lifestyle habits through educational workshops to pass on this training.
•To encourage more active patients and citizens and to make them stewards regarding their illness.
Population
Patients associations, users, patients and patients family are the target population. At first, we have worked with people from the associative field considering that thus there is more chance that the skills and knowledge provided will achieve a more efficient dissemination in the field of their association.
Methods
 
Methodology
This initiative is designed as a cascade training strategy and peer-to-peer learning. Patients are trained to train other patients. Trained patients replicate the training to other known patients, or other patients contacted through social networks (Twitter, Facebook, YouTube, blogs, Webs, and virtual classrooms). It is a practical and skills training approach.
Timeframe implementation
Three months per each pathology. At first you have to form the initial group of trainer patients and then ensure that this formation extends in cascade through associations or mainly healthcare settings themselves (there are 170 potential clinical units to work with).
Implementation tools available
Several educational materials (guides, presentations, case studies, videos, blogs, digital meetings with professionals) for use in the training.
- Model letters of invitation to participate
-Model call for training activities programs
Implementation cost
200000 euros.
Results
 
Method used to measure the results
- Surveys of satisfaction to those who are trained.
- Semi-structured interviews with trainer patients.
Results
- Results of satisfaction. (satisfaction above 85%)
- Qualitative data on expectations and subsequent measurement
Analysis of the results
- Satisfaction Surveys: Statistical Analysis.
- Semi-structured interviews: Content Analysis.
- Evaluation studies of the training activity.
- Pre-post training questionnaires.
Implementation barriers
 
Did you find implementation barriers?
Yes
Please describe implementation barriers
Expectation of a greater continuity of the training programs by forming patients
- Reluctance to be patients who "are" indeed training instead of health professionals
Describe the strategies used to overcome the barriers (If needed)
- Clearly define since the beginning the "rules of the game"
- Clarify the benefits of peer-to-peer training and stress that is a complement to the training provided by health professionals
- Continuity with social networks, e-mail, blogs, etc.
- Patients Congress, as a place of motivation
-Regional meetings with patients and professionals
Other information
 
Other information about the GOP that you would like to add (Link or attached document)
There is no specified text here
There is no specified text here
Contact information
 
Name: Jerónimo Pachón Díaz
Position/function: Quality, Research, Development and Innovation General Director
Department: Directorate of Quality, Research, Development and Innovation
Organisation: Andalusian Regional Ministry of Health and Social Welfare
City: Seville
Country: Spain
Region: Andalusia
E-mail: reyes.sanz.sspa@juntadeandalucia.es/ mconcepcion.barrera@juntadeandalucia.es
Phone: 0034 955006548
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